Main Topics - Kildare Nationalist

Epidermolysis Bullosa

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

Cutting-edge medicines hoped to transform treatment of incurable skin condition

Cutting-edge medicines hoped to transform treatment of incurable skin condition

Sun, 18 May, 2025

They are to treat epidermolysis bullosa (EB) in Ireland.

Girl with rare skin disease excited to go to secondary school

Girl with rare skin disease excited to go to secondary school

Sun, 23 Feb, 2025

Casey Connors, 12, from Clondalkin, is getting help to brief her new teachers and classmates before she starts secondary school in the autumn

Colin Farrell hails friend’s courage after running the Dublin Marathon

Colin Farrell hails friend’s courage after running the Dublin Marathon

Sun, 27 Oct, 2024

Farrell took part in the event to raise money for Debra, the national charity supporting people living with epidermolysis bullosa.

Marathon bid by Colin Farrell and friend with skin disorder raises €500,000

Marathon bid by Colin Farrell and friend with skin disorder raises €500,000

Sun, 20 Oct, 2024

The actor is running the Irish Life Dublin Marathon, with Emma Fogarty, who has the condition epidermolysis bullosa, joining him for the final 4km.

Book about ‘warrior’ four-year-old helps classmates understand skin condition

Book about ‘warrior’ four-year-old helps classmates understand skin condition

Sun, 14 Jan, 2024

Bobby Clifford was diagnosed with epidermolysis bullosa shortly after his birth.